Opening my heart. Being a step mom to a child with special needs. Pt 2

Pt. 2 is about my setting down with my new family.

Continuing with my last post. 

 I had just met these two beautiful girls and their dad, D. We were talking about Emma's diagnosis with Angelman Syndrome. I know now that Angelman Syndrome is a genetic disorder of the 15th chromosome. Now I am not going to get into the science part of it all but if you would like to know more, you can go to www.cureangelman.org for more information. 

After the girls went to bed that night, D and I sat up with a cold beverage and talked about the girls. I asked him where their mother was. D seemed like he didn't want to re-live that part of his life. But told me that mom was still in the picture but he had sole custody of the girls. While I am not sure if I should open this can of worm on a blog for everyone to see, I am just going to say that that girls are safe and away from harm. They are well taken care of and are loved by all who surround them. 

D and I started our relationship. We moved in together and I took on the motherly role of the girls. My daughter S and and I were settling in comfortably. THere were some things to get used to. Like going from one kid to three, that was a big adjustment.  Dealing with a boucning beauty that would not sleep more than 3-4 hours a night. We made it work the best we could. We were happy...the Brady Bunch.

A few months later D had asked me to stay home with the kids. Child Care was outrageous and E would sometimes stay home from school sick. I left my job and started to stay at home with S and getting T and E ready for school. Some have said that I am a hero, a saint, that they couldn't take care of a kid that has special needs that is not my own. I don't consider myself any of those things. I fell in love, not with just one person,but with three. I am not going to lie, I almost did not stay. I told myself a few times that I couldn't handle this. I couldn't stay and play this role of mother to another womans children. I felt guilty. Then T opened up and starting talking about her past. The things that this little girl and her little sister E went through behind their daddy's back while he was at work. She told me stories of feeding her sister buttered bread and giving her a bottle while mommy slept locked in her room. T would then lock her sister in her room because she was afriad that E would crawl out the front door and get hurt. T would not say anything to her daddy when he got home from work because she was told that she would get into trouble. 


Sorry, I had to pause for a moment. I get emotional talking about that. 


Anyway, I fell head over heals for these girls and there daddy. Savannah and I loved our new place in our lives. The first year with E was difficult. Teaching her new things, getting used to all the doctors on her team of doctors. IEP meetings, Therapies, getting in touch with a support system with other parents that have Angelman Syndrome. My life was busy. E was not used to adjusting with me pushing her the way I did. Pushing her mentally and physically because I believed in her. I knew she could do the things I was asking her to do. She would run to her daddy as soon as he got home. It took a year to finally show her that I was doing this to make her better, not to be mean. It broke my heart to do it, but I had high hopes for her. 

That Christmas was a special one. Not only was it our first christmas together, but that is the day that my husband proposed to me. Of course I said Yes. I felt like I had found my place in life. 


Well, that is it for the day. My Angel is getting off the bus in a bout a half an hour. I will write more tomorrow. Thanks for following me and for allowing me to share my story. Take care.

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